INDIANAPOLIS -- An Indianapolis family is working to raise awareness about a rare genetic disease.
Angelman Syndrome is an incurable disorder that impacts one in 15,000 people.
Those who have it suffer from delayed development and are sometimes nonverbal. They also tend to have trouble with balance and will often need life-long care.
Amanda and Adam Moore have two adopted sons twins, Jackson and Baden.
Amanda said shortly after bringing the boys home they began noticing the subtle differences in the boys' development.
After dozens of tests with no answers, a flutter of the eyes tipped the doctors off that Jackson may be suffering from something more serious.
Jackson was suffering from seizures nearly every five minutes and was diagnosed with Angelman's Syndrome.
Now the family is working to raise awareness about the rare disease and to raise money for the foundation working to find a cure.
Watch the video above to hear their story.
